May 22, 2011
Sorry I have not posted lately to let you know how I am doing. I have not been doing so well lately and not really been in the mood to write. Here’s what’s been happening over the past two weeks.
During the first week of my chemotherapy, my body did not handle it well and I could not keep any food or fluids down. The vomiting was very intense the first two days but subsided the rest of the week. Although I vomited daily, later in the week it was only two or three times a day. Because I could not keep much in my body, my kidneys started to shut down.
Then on Tuesday, May 17, I received a call from the doctor saying that the blood tests indicated my kidneys were in trouble and I needed to get in right away for IV fluids. I had to go in for fluids everyday that week because my kidneys were only recovering a little each day. Thank you to Becky and Chuck for taking me to Kaiser each of these days and sitting with me through the entire hydration process. I can’t tell you how much I appreciated your help.
By Thursday I was feeling pretty darn good, compared to how I started the week. It’s amazing what fluids will do to your body. However, Friday I woke up feeling different. Still better than I felt at the beginning of the week, but just not as good as the day before. I couldn’t figure out what was different about the way I was feeling until the evening came. By then I could tell that the changes I was feeling were changes to my mouth and throat.
The effects of the radiation are finally taking their toll on me. I am now experiencing the beginnings of the pain the radiation is going to cause. It feels like my throat is being sliced open from the inside. This has also dramatically impacted my ability to taste and to produce saliva. As I’ve said in previous posts, things don’t taste good. At least before they were tolerable; now the changes are so dramatic that the taste in my mouth is sour and acidy even without trying to drink anything. Anything with sugar in it attacks my tongue and leaves some sort of white glue-like substance. I have to rinse my mouth with salt water/baking soda solution to get rid of this white stuff. I can’t even taste the salt in the water.
The biggest problem I have right now is the pain and taste in my mouth. This is making it impossible to eat anything and most everything I try to drink makes me want to vomit. Try to think of having to put the most horrible tasting thing in your mouth and leave it there, forever. That is how it is for me right now. Trying to get the calories I need each day is very difficult because of this condition. I am nearing the time when I will be dependent the feeding tube. I’m not looking forward to that.
This weekend the entire staff at my office participated in the 2011 Relay for Life in Elk Grove. They did this as a way to show their support for me during my struggle with cancer. I have worked with these people for many years and they are like family to me. I want all of you to know that it really touches my heart to know that you would all take time out of your busy schedules to show your support for me and to raise money for a great cause. Thank you.
I don’t really have a verse for today, but hope is what comes to mind. If you have a favorite verse about hope, I would love you to send it to me or post it as a comment.